Patience hell, I’m going to kill something
I have two children who couldn’t be more different.
My oldest, a girl, is the kind of student every teacher dreams of having at least once during their career – well behaved, participates intelligently in class discussions, turns her homework in on time, tutors other students, nice, polite, smart, a joy to have in class.
My youngest, a boy – is the kind of student that could make teachers question their career choice.
I’ll be the first to admit that he can be challenging, can be disrupting, can be frustrating. He is also brilliant. He brings ideas to classroom discussions that are both thought provoking and unexpected from someone so young. His annual FCAT (Florida Comprehensive Assessment Test) scores are in the 95-99 percentile range, so it’s not a matter of him not being intelligent.
He is the kind of student every teacher should have at least once in their career, just to have an opportunity to use that expensive college education to actually help a child, to make a positive difference in a kid’s life – a kid who wants to learn, but doesn’t fit the typical mold of how kids are supposed to learn.
From pre-school on we knew WK was going to have issues. He would literally bounce off the walls – I have dents and holes throughout my house to prove that.
Once he started public school his time in hell began. Teachers constantly complaining about his behavior, about his lack of ability to stay on task, to remain focused. Teachers who allowed toxic environments, hostile environments fester in their classes, and not only allowed the other students to prey on WK, but also joined in the fray.
During his first parent/teacher conference, his first grade teacher told us she was concerned about his apparent lack of fine motor skills because of his failure to stay inside the lines when he colored. She somehow failed to notice the intricately detailed drawing of the sports car on the back of the worksheet.
On a hunch I asked WK why he scribbled on the pictured, why he didn’t do a better job of coloring. He’s response “so I could finish faster and draw on the back. She said I couldn’t draw until I finished coloring.”
WTF?!
Fine motor skills my ass… he was working too far outside their neat little box. He was, even then, marching to not only a different drummer, but a whole different band.
In second grade, his teacher (who was also a friend outside of school) mentioned to us that because she was a employee of the school system could not advise us to put WK medication, but the school would probably go easier on him if we did. She hinted that life at school would only get worse for him if we did not cave on this point.
We fought this for years. I did not want my boy to be medicated, I did not want him to be labeled. I did not want this stigma to follow him for the rest of his life.
By the time he was in fifth grade, we knew that we no longer had a choice.
The medicine did funky things to him. He no longer slept well. He began to suffer migraines – headaches so severe he would throw up. He began to have stomach problems, ended up in the ER and eventually began taking Nexium for acid reflux. He began to be afraid of the dark and became claustrophobic.
But through it all, he still did not function better in school
He started going to counseling and the first doctor he went to was basically useless. He would xerox whole passages of books for us to read. He would tell WK the same things we told him about how to stay on task… it was a colossal waste of time and money.
We finally found a woman that seemed to know what she was doing. Through weekly session we discovered that it wasn’t just a focus issue, but much more. Yet, because of his age (WK was maybe 12 by now), we couldn’t get a definitive diagnoses. For that he would have to be at least 18. So there were no ‘disorders,’ instead it was ‘syndromes’ or “tendencies.’ But, regardless, he was placed on yet more medication.
To back track slightly – turns out the original medication was actually working fine. With his ability to focus more, his underlying panic/anxiety and obsessive-compulsive ‘tendencies’ were more visible – hence the migraines and claustrophobia.
Still through this all, through countless meetings with teachers, guidance counselors and principals, we could not get the schools to offer any sort of assistance in helping WK function at the level we all knew he could – despite the reams of doctor provided documentation. These educators would offer up plans for helping WK with his assignments, on how they would help him keep track of homework… this would last for about a week and the teachers would abandon these plans.
We have had these same educators tells us that it is not uncommon for gifted students to fail.
WTF?!
Aren’t these the students you want to help, want to see succeed. Not just LET THEM FAIL because these sort of students actually mean teachers have to teach and not just guide their little lemmings off the ledge.
Along the way, WK has had a couple of teachers that seemed to understand he was different. We gave them what information we could about him. Lo, and behold, they worked with him, took what we said about how he learns differently – guess what? He was an A student in those classes. Those teachers remain favorites of his and ours, they were rare islands of tranquility in a torturous ocean.
All this brings us to this past Friday. Yet another conference – this time with WK’s guidance counselor and the school psychologist – the same psychologist who said WK didn’t qualify for any assistance from the school because despite his difficulties and the reams of doctor’s notes and recommendations, he was too smart. It was a matter of numbers.
Hubs took this meeting. I usually don’t attend these because they are so infuriating. I tend to get emotional and my road raging tendencies begin to surface. I think Hubs is concerned I will go all spider monkey on one of these bitches and get arrested.
So, after being made to wait for about 15 minutes passed his scheduled appointment, Hubs goes into the meeting. They rehash all the old offenses, all the old arguments. Hubs reiterates that we only want help getting WK’s teachers to provide us with his assignments so we can help him keep on track.
After about 30 minutes of this back and forth, at one point, Hubs says the four letters that apparently are the keys to the kingdom – ADHD.
There has never been a secret attached to this one issue… from day one, this seemed to be a given. We believed that we had been putting that alphabet code out there for all to see all these many years, believed that this was something we gave them each year since fifth grade. Apparently we were wrong.
Official forms were brought out, words like ‘Americans with Disabilities Act,’ and ‘all we need is a doctor’s diagnoses’ were thrown out, phrases like ‘sure we can get him all the help he needs’ were uttered.
WHAT. THE. FUCK?!
Ten years, ten damn years and this was all it took!? All this time, all the conferences that we attended, all the times we brought this up to teachers, to administrators, ad nauseam and no one said ‘just have your doctor fill out this form.’ A form until that day we never knew existed.
Next week Spring Break begins and WK will be out of school. Come Monday after the break, that golden ticket will be filled out and signed, then delivered into the hands of the school gods. Hopefully we will finally see the heavens open up and hear the angels sing – six weeks before the end of his first year in high school.













I don’t blame you one bit, Tara. I had similar experiences with two different schools. It was frustrating and heartbreaking. It still angers me to this day that I had to fight so hard to get the help that my kids needed and deserved!
I’m here for you anytime you need to vent!
Hugs, Stacey
So, I started reading this for entertainment in the middle of the night, and found that you snuck into my journal and wrote what Son #1 and I went through! I am so stinkin’ mad right now– not at you, but because I just re-lived 12 years (actually 13, we kept our gifted one back when we worried his behavior would get him flushed in High School) of school nightmare. When they pulled out the ADHD card on ours for the first time–2nd grade– I watched my mild-mannered husband rip a new potty hole for the teacher. He said he was sick of everyone sweeping everything under the ADD rug. I wish I could say it gets better, but out of all of those years, we only managed 2 gems along the way– teachers who he flourished under. One very non-gem killed our hopes for Juliard, and almost crushed his love for music entirely. What I learned, and you should know– is to NEVER give up on your inner spider monkey, protect him. Good luck, and sorry for the rant.
“I will go all spider monkey on one of these bitches and get arrested.”
I love you.
I hate public school and red tape. Glad progress is being made. What a waste of time!!
I don’t blame you for not wanting to go to those meetings. I’d want to rip someone’s head off. They obviously don’t pay attention to a word you say to them.
I hate that WK has had to go through all this crap for no good reason. It’s incredibly frustrating, as a teacher myself, to know that the system is totally unequipped to handle these situations.
Cliche to say, I”m sure, but don’t forget that Einstein sucked at school too… but, it’s not like you don’t already know how intelligent WK is.
That is really frustrating to read. My oldest is not one who flourishes in a rigid environment either. He is smart, sensitive, talented, inquisitive, and generous to a fault – all traits not easily measured by a standardized test. Despite our frustrations with traditional schooling, I’m really confident in his ability to find a place in this world. He seems wholly unaffected by any comparisons to others and he looks forward to meeting his future head on.
Sounds like WK will get there as well.
Wow. This is intense. Yet another reason why the public education system in this country needs so much help. Kids with varied learning abilities need to be accounted for and tended to. Each. And. Every. One. No child should have to deal with a system that doesn’t know or want to help them.
I’m sorry you and WK have to go through this. HOpefully now, things will get better.
I feel like I just read an alternate life of my son. Your son sounds so much like mine. In fact, my son’s kindergarten teacher sounds like your son’s 1st grade teacher. She showed us one of his drawings of a tree, conceded that the root system he drew was a little advanced for his age, but she thought the ble “scribbling” on the top of the tree, in the leaves showed frustration. I corrected her, and I pointed out the blue line he’d drawn from the roots, up the trunk, and swirling around the leaves was his way of showing how a tree draws water from the ground and up into the leaves. All he was asked to do was draw a tree. The teacher blew it off, couldn’t appreciate him.
When she started pressuring us to medicate him we pulled him out of school at homeschooled him. We’ve homeschooled ever since, and it’s really the best thing that ever happened to our family. As much as I beat my head against a wall with my son trying to get him to do stuff here at home I know it would be ten times worse if I had to fight the system on his behalf. I know his anxiety and OCD issues would be worse if he had to fight the system as well.
I hope the new form does bring your son the help he needs. I’m afraid I have lost faith in the ability of the public school system to help kids like our sons, though.
Please keep us posted!
Stacey – thanks for the shoulder
Hostage – sorry to evoke so many bad memories. Thanks for the support
NOLA – aww… you’re the best.
Cablegirl – thanks for the reminder… I know he will succeed, but it’s hard to watch the struggle.
Tasina – good for your boy! Tell him to never give up either.
Nik – thanks girl… yes, the public school system needs a complete overhaul.
G.Mom – in hingsight, I wish now that I had taken WK out and homeschooled him too.
Ugh. Just ugh.
I’m glad there is finally progress being made, and I hope that it works. Unfortunately, what I’ve seen in people I love dearly is that this is not the end of it. Savor the victory, absolutely, but stay on guard as well.
I’d strongly recommend researching other possible schools and brain-wave therapy in the meantime. And I’d also consider homeschooling, if that’s at all a possibility for you. I hope you’re not angry or offended by my saying this. I just can’t help myself sometimes. I just don’t want to see another one lost by a system that treats everyone who’s not absolutely average as something that is not worth cherishing, nurturing, and educating!
WOW – how frustrating. I cannot imagine the turmoil and crap you – and your son have gone through…I hope and pray things get sorted out…please do not kill anyone…but beat the snot out of the system…and keep your son’s interests # 1..you are doing a great job in a crummy system. Hang in there.
It’s exceedingly rotten that you guys have been going through this. I am happy the Golden Ticket finally surfaced. Wow. You guys have been through so much.
It’s a little ironic. My wife and I were talking tonight about homeschooling when our three year old is ready. Your story certainly makes this option seem pretty appealing.
I hope you guys have a good Easter.
I feel your pain. Great, wonderful post.
April – thanks for your support. Not offended at all, homeschooling is still on the table… just waiting to find out what all this help will turn out to be.
Laura – it is very frustrating, but I think (maybe) I can keep my homicidal feelings in check. =)
Chuck – if this is the push you need to seriously consider homeschooling, then my work here is done.
Ann – thank you…
Man, that’s nuts. I just don’t get it. If I were a teacher, I’d want to HELP students. Well, I’m glad you found your “golden ticket”…even if it was 10 years late.
xoxo
Ashley
I know in my area, unless there is a diagnosis on papaer the school will not offer the idea…rumor is they do not have the resources (funds, time, patience, whatever) to assit kids in need. Although we have a few years before the boys are in school this type of story makes me wonder if I should try to homeschool. It sounds like things are heading in the right direction for you now; I wish you the best of luck!
well, i’m glad the forms have at least finally come into your hands. and just remember, he may be hindered from ivy league based on current marks, but when he knows what he wants to do and where, it will fly by pretty easy for him.
(fyi, this is why i’m strongly considering home schooling)
I really hope it gets better for him now.
My SS also has ADHD but fortunately, meds have helped him a lot. They’re not magic, but they’ve allowed him to focus and learn, whereas before he just couldn’t, no matter how much he wanted to.
Best of luck to you all~
xoxo
My dad & stepmom have dealt with this same issue with my half brother, Chris, who will be 17 in june. He’s a sophomore in high school, and incredibly smart & talented & gifted, but he just needs a little extra help to focus. He, too, has ADHD, and he’s seriously one of my role models.
I’m glad that you guys are FINALLY getting some answers, even if it took so damned long.
Happy Easter, hon.
awh TARa, i love your inner spider monkey! i’d root you on … and bail you out of jail, too. he he. a little he he?
**hugs and a shoulder for you anytime you need it my friend**
beany loves ya
I can so relate to the ‘road raging tendencies’ when in those conferences…I tend to be the same way. Although your post was serious in nature….it is good to read your humor injected along the way. I hate.hate.hate. the public school system. My best friend and I were conversing yesterday evening while the kids colored eggs. She is a lst grade teacher and she is so burnt out at having to fight her colleagues to get her kids the help they need!! Imagine that
I pray that this is the right direction for your son. It can be quite a frustrating journey. I see pre-schoolers with much the same ’symptoms’ of your son and I ache for them because I know they will become more of a statistic than a success because not many parents have the ’stickiness’ it takes to see it all through to a working resolution…they just give up.
I am so sorry this happened to you. As a mother and a teaher, I am appalled. Your son is lucky that you fought so hard and never gave up.
Happy Holiday’s, my dear.
Ashley – thanks for the support. Yes, 10 years to way too long.
Carie – I think that was the problem too, the thing is that we thought the school system had a doctor’s diagnosis all this time. We just didn’t know about having that signed.
ZJ – Ivy League couldn’t handle him either.. ha! He wants to design cars. Keep homeschooling in mind, seriously!
Cyndy – the meds are working, but it’s taking a loooong time to find the right dosage. Thanks for the support.
Heather – sounds like Chris and WK are kindred spirits… thanks!
Beany – thanks for the shoulder and hugs… it means a lot
Danielle – Forget a ‘women scorned’ hell hath no fury like a pissed off mom! I know there are more teachers like your friend… it’s sad that they too are being held back.
Kelly – Thanks for your support… my fight’s not over, but knowing I have a place and people to vent to helps.
Wow. WOW. You are an inspirational parent, thank you for sharing this. Please let us know how things progress.
My daughter has ADHD. I know the trials of this. We can’t medicate her, unfortunately, because the stimulants cause tics and fainting at the smallest doses, the Strattera caused her to be lethargic and do self-harm. She had a DRAMATIC shift in mood and behavior on that drug. The stupid Doc didn’t want to see us if we couldn’t medicate her. Without a referral, we can’t see the other Doc on her CHIP plan.
BUT, we’ve also fought tooth and nail with teachers and other ‘professionals’ to do their job. This year she as an awesome base teacher, she’s gold. But the last three years were TORTURE. I DO understand the crap you’ve been through.
Good grief! I’m frustrated just reading about it! I’m so sorry it’s taken this long.
Tara, you REALLY need to meet my best friend. That is brutal, and I am happy for you to FINALLY be getting some help. ((Hugs))
Hang in there. Just let me say that I am EXTREMELY PROUD of my nephew (and his parents). We have always known he is a bright, wonderful kid and I am truly grateful that he as such great parents to fight for him every step of the way. It’d be nice if the school systems would do this kind of thing on their own but as you have found in your struggle, that is not the case. YOU GO GIRL, WHOOP SOME BUTT!!!! (By the way, I am impressed that the hubster “let” you stay home (HA). Always remember, your family and friends (I’d like to think I”m both) are here for you and WK!
This is shocking! Not surprising (sadly) but shockingly awful. The notion that there are key words you have to magically intuit and that no one will prompt you about is like those terrible dreams where you have to take a test in a course where you’ve never been to class all semester, and you’re desperately trying to remember which chapters you were supposed to read and NO ONE WILL REMIND YOU. Only real-life school shouldn’t be like that.
I’m so glad he’s getting the help he needs, and at least perhaps this will make his high school years that much stronger. But still… Horror.
Hot – thanks for the support. I don’t think the average parent knows what can happen in the school system with a challenged student.
Sue – good luck with your daughter, I don’t know what WK would do without his meds. I would definitely have to homeschool him then.
Sandy – thank you so much!
Mr. Lady – thanks for the referral… I checked out her site, I think we have lots in common.
Dina – you rock! It helps having friends (family) who understand and back us up.
Mommy Time – I couldn’t include everything that has happened because there are still some pending concerns with specific teachers we are pursuing. But, the dream analogy is perfect.
My son is only five, but this sounds just like him! I’ve wondered about the ADD/ADHD thing….
Honey, I hope it helps. Unfortunately, sometimes that ‘golden ticket’ ends up just being another piece of paper in his file. I am soooooo sick of school not doing what they’re required to do per Trist’s IEP, that I am about 2 steps away from homeschooling. I’m off to write a post about it now, in fact.
I pray that your son’s will really be of use and enforced. Big Hugs!
(I figured out how to log out of wordpress! No longer your ’secret admirer! lol)
I wish I could say this was the first time I’d ever heard a story like this. But I’d be lying.
Sadly, my experience has been that most of the kids who end up as “frequent fliers” in their AP’s office are usually the smartest people in the room. They’re usually bored off their asses and just looking for a way to be entertained.
It’s so incredibly frustrating to hear the “old fart” teachers ENDLESSLY bitch about kids who are ABSOLUTELY NOT problems in my classroom. I want to tell them, “MAYBE
IF YOU’D GET OFF YOUR ASS AND INTERACT WITH THESE CHILDREN RATHER THAN SHOVE WORKSHEETS AT THEM, THEY WOULDN’T BE SUCH DEMONS!!!”
They refuse to believe that “this is how I learned it” isn’t going to cut it for the short-attention-span-theater generation.
Should school be on par with an amusement park? No. But do we have to bore their toenails off? Hell no. Finding somewhere in the middle will help them not only figure out what “real life” is like…but will also, I don’t know, help them LEARN??!?!?!
And. Don’t even get me started on how that ties into our nation’s math scores…
(Or my spider monkey will come out for a spin!)
BTW, I’ve heard nothing but horror stories about Florida’s special ed. system. My heart goes out to you.
**sorry for the premature “submit comment”** grin
Momo – If you ever need someone to commiserate with or rant to, I’m here.
Nissa – Yep, we’ve had a few of those IEPs too and nothing came of it, but ADA means I have a little more clout and I’m not afraid to use it.
Ms. H. – It’s good to hear a teacher is as frustrated by all this as a parent is… thanks! Yeah, on the whole, FL sucks when it comes to special needs kids.
Tara-
I’m late getting here, but thanks for sharing this. I know a little of what you’re going through & that part sucks. However, it sounds like you have a great kid! Hang in there!
I’m so sorry to hear this, Tara.
I agree with the sentiments above. It’s ridiculous and outrageous that they didn’t make it clear years ago.
I’m glad that you finally have that golden ticket, though, and will stay tuned to hear just what that means. I’m hoping for all the best for your son (and your whole family).
Hi,
Got to your blog totally by mistake. I am in a hurry, but I slowed down long enough to read most of this post…
Email me if you would like. We have a son who became ill at age 10 and did not fully recover. He was left “disabled”.
Your fight may not be over. In our school district this paper work, the “laws” that surround it, all the talk about I.E.P.’s ect is just talk. What they do and what they say… in our case… were two different things.
Good luck.
I like any woman and any blog that types out FUCK.
You are great. Hang in there.